Kisakye Agnes in Uganda Interview | Joslyn Olsen (HemoStories Podcast) | Blood Vibrations: Sound & Music from the Bleeding Disorders Community

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Joslyn Olsen (HemoStories Podcast) - Kisakye Agnes in Uganda Interview

from Blood Vibrations: 5 (Blood Work Mixtape) by This Is Our Musics

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about

BIO: HemoHelper.com was developed and established in the greater NYC area in 2014. While the site is designed to be an approachable, non-medical resource for hemo-related tips, stories, news, products, etc., at the heart of HemoHelper are the humanitarian initiatives created to help those affected by bleeding disorders all over the world.

It has a strong social mission to help families affected by bleeding disorders, through information, awareness, and services. This is accomplished through the HemoStories Podcast and our annual medical identification and supply donation efforts.

Bleeding disorders are close to the hearts of the HemoHelper co-founders. Sisters Josie and Holly Olsen have a mutual interest in helping the bleeding disorder community: Forrest, Josie’s son, was born with a severe factor I deficiency, otherwise known as congenital afibrinogenemia.

BIO: Incognitus.

TRACK: In this HemoStories episode, Joslyn interviews Agnes Kisakye, the executive secretary of the Haemophilia Foundation of Uganda. After helping her brother’s son discover his bleeding disorder after a series of unfortunate bleeds, Agnes, a social worker, began seeking out other hemophiliacs in her country and helping them.

Uganda has a population of approximately 38 million people, but only has 81 diagnosed bleeding disorder patients. That doesn’t mean there aren’t more out there (likely thousands, in fact), but in this developing country there are limited resources and a general lack of awareness regarding bleeding disorders.

credits

from Blood Vibrations: 5 (Blood Work Mixtape), released July 29, 2016
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☀ HemoStories Podcast hosted by Joslyn Olsen ☀

☀ Guest: Kisakye Agnes ☀

☀ HemoStories Podcast Theme Song by Mason Morris ☀

☀ Track art by Adam Smith ☀

☀ The interview with Kisakye Agnes originally appeared on the HemoStories Podcast, hemohelper.com ☀

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Blood Vibrations: Sound & Music from the Bleeding Disorders Community image

Blood Vibrations: Sound & Music from the Bleeding Disorders Community Portland, Oregon

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click to learn about our partner FOLX and the empowerment of people from diverse backgrounds within the bleeding disorders community:

folxfolx.org

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